Terry Pratchett vows to carry on writing despite daily struggle with Alzheimer's

Published by Jon Land for 24dash.com in Health
Wednesday 28th May 2008 - 10:07am

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Terry Pratchett vows to carry on writing despite daily struggle with Alzheimer'sTerry Pratchett vows to carry on writing despite daily struggle with Alzheimer's

Best selling author Terry Pratchett today vowed to carry on writing and beat Alzheimer's, the disease he was diagnosed with last year.

The Discworld author said his typing was no longer as fast and his spelling had become erratic.

But he said he was trying to be philosophical and was hopeful researchers could come up with a means of combating the disease.

Pratchett, 60, told BBC Breakfast he suspected something was wrong because he was having "Clapham Junction moments, where it just gets too much".

He passed a mental test involving questions like "what day is it?" and doctors initially told him he did not have the disease.

But he was eventually diagnosed in November last year. He suffers from a rare form of the disease called posterior cortical atrophy, which refers to shrinkage of the back of the brain.

He said: "I used to touch type as fast as any journalist does and my spelling was pretty good. Now I hunt and peg and my spelling is erratic.

"I can spell transubstantiation and in the next bit I can't spell colour because it's as if bits of the network are switching on and off."

Looking well, he continued: "I'm lucky in a sense, I have been diagnosed quite early, and also have got enough push and enough support to get fully diagnosed, and also my books have made me quite a lot of money so I can afford to take an earlier retirement.

"I shan't. I shall carry on writing but I just will have to do it more carefully.

"There's a very good way of not catching Alzheimer's - that's to die around the age of 30, to die before you get old.

"The other way now is to try and beat the thing, which is what I'm trying to do, which is why I'm now patron of the Alzheimer's Research Trust.

"I gave them some money and I think it's something we can beat."

In March he gave half a million pounds to the ART to help find a cure for the disease.

He said: "We should be aware that it's an illness, it's not some visitation from heaven. This is something that can't be repeated often enough.

"It's not something to be ashamed of. It's not because you've done something wrong."

He said researchers looking into the disease "seem to be pretty much on the trail" and in five years' time the situation could be looking "hopeful".

"My father always used to say you have to be philosophical about things, by which he meant stoical," he said.

"The future is going to happen whether I'm scared of it or not so I do my best not to be. Around about five o'clock in the morning things might be different but you just have to face it."

Pratchett is one of at least 15,000 people in the UK who are under the age of 65 with early onset dementia.

The progressive, incurable brain disease is the most common form of dementia.

People suffering from the early stages of Alzheimer's can experience memory lapses and have difficulty finding the right words.


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